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Quarterly Meeting Notes

 September 2010

Venue: Paddington Arts, Main Hall

 

Ziaur Rahman – BME Health Forum Chair, welcomed all to the meeting and introduced the first Item.

Item 1:

Response to ‘Good Practices for Access and Well-being programme’ report and recommendations

 

NHS Kensington & Chelsea

Patricia Wright – Chief Executive of NHS Kensington & Chelsea

 

Patricia Wright thanked the BME Health Forum for inviting her and began by stating that she felt that GPAW was a very positive piece of work and that she would respond on behalf of the PCT by giving a flavour of what NHS K&C have been doing and what they intend to do in the future.

She then went on to state the fact that at the moment there is of course little surety because of the significant changes to be instigated after the White paper – but that NHS K&C is committed, and have a responsibility to make sure that the work that has been done is not lost/ undermined due to the changes. Also that it will be our responsibility to seek out the relevant people to engage with all the time.

Patricia then went on to look at the Recommendations of the report:

 

Adopting a Community Health Centre model

This is happening here and now with Healthcare for London Polyclinics – or what is now referred to as ‘Polysystems’. However instead of specifically bringing services together under one roof, we are sharing resources e.g Diagnostic services alongside Support groups and shared reception.

So how do you move towards more of an interaction with the community?

In K&C we are well under way with St Charles Urgent Care Centre. St Charles is a focus for urban regeneration. We are putting plans into getting community organisations involved in delivering multi-services.

Also in Earls Court we are developing more of a social enterprise model. It will be used not just for Health services but also for other activities.

Again, we want you to be involved. We have St Charles User group and an Earls Court User group. We want you to be involved in the development of these services.

Community development approach and Cultural Brokerage approach

Patricia stressed the importance of being aware of cultural diversity when delivering services. She stated that the health model and the social model has to be compatible.

So engagement is key – In K&C they do have quite a lot of engagement in terms of steering you in the right direction for the healthcare you need.  Not so much has been done for children and young people but more work is being done on this.

BME Access facilitators

This is more difficult but as we implement the polysystem approach there is a place for this.

Partnerships

How do we make it easy for BME groups to work in partnership?

We have to make the tender process easier and we should encourage groups to form consortia.

 

NHS Westminster 

Vee Scott, Director of Inclusion, Communications and Engagement on behalf of Chief Executive Michael Scott who sent his apologies.

Vee thanked everyone involved in the GPAW programme stating that it was a great achievement.

Good News: since Primary Concern report (precursor to GPAW) NHS Westminster have produced a comprehensive Interpreting guide and sent it out to all GP practices and Dental practices for their frontline staff.

She then went on to talk about the recent Health Foundation bid.

This was bid in partnership with:

  • BME Health Forum
  • Queens Park PBC Cluster
  • Queens Park Bangladesh Association
  • WSPM Agape
  • Imperial College Healthcare NHS Trust
  • Central London Community Healthcare
  • Mosaic Community Trust

The bid is about adapting the Community Health Centre model from Toronto and piloting it.

So far we have been done very well to be short listed and attended an interview and we will find out shortly if we have been successful.

However, there is a definite commitment to move this work forward whether we are finally successful in winning the bid or not.

There are big changes in the NHS – a lot of cuts

The White Paper states that by 2013 the PCTs will be abolished and the commissioning of health services will move to Practice based commissioning.

We are now working with GP clusters to get them ready to take on the work. We want to make sure that none of the important work is lost in the transition.

Involving People and Equalities is still on the top of the list as priorities in the White Paper.

Obviously there are still many unanswered questions but we will try and forward you more information as soon as possible.

 

Q&A

 

Natalia (Midaye)

Wanted to thank NHS K&C for funding Midaye to do outreach work. They successfully helped 10/12 women who were previously unable to attend a medical centre without help.

Lev Pedro (K&C Social Council)

Question: There is a lot of uncertainty at the moment in the Voluntary sector – we are aware that we need to develop new relationships with GP consortia who will take over the commissioning of services. What advice could you give to us at this time?

Patricia Wright (NHS K&C)

Answer: We have a responsibility to let the Consortia know how important the work is that we do with the Voluntary sector. There is work for us to do to educate the GP commissioners that the voluntary sector is important in the pathway to care. We CAN help but YOU need to make sure you are seen and heard as well – in GP plenaries, media presentations. Be proud – use the concept of the Big Society.

Vee Scott (NHS Westminster)

Answer:  This is a new world. It is very important how you position yourselves. We are sowing the seeds for them – helping them to realise how much they need to work with the community- but you will need to be visible.  At our AGM there will be GPs present – look for opportunities like this to engage. There will remain outcomes around Equalities and they will need your help to achieve these outcomes.

Sylvain Tecoura (New Roots)

Question: Vee Scott referenced the Toronto Model – Community Health Centre – Can you explain a bit more about what this is?

 

Brian Colman (NHS Westminster)

Answer: This is a model for promoting access to healthcare for disadvantaged populations – Healthcare services in amongst a broader range of services. These Community Health Centres are Community governed and Community controlled.

 

Vee Scott (NHS Westminster) – With the Health Foundation bid we are trying to pilot a model based on this. However if we are not successful we will still work on trying to move this project forward.

Patricia Wright (NHS K&C) – In K&C we are not working with this model as we are already adopting these principles in the development of Polysystems with St Charles and Earls Court.

 

Item 2:

Film Screening: OPEN SECRETS (a short film documenting a family coping with severe and enduring mental ill health)

Vee Scott introduced this film made at the North East Foundation Trust. ‘Very moving and thought provoking’.


Item 3:

BME focused Mental Health projects in Westminster and Kensington & Chelsea 

Nadra Gadeed (BME Mental Health Promotion specialist –Westminster CLCH), Laetisia Staniforth (Mental Health Project Manager/ Commissioner NHS Westminster). Jill Watson (4 Minds Kensington & Chelsea)

Nadra spoke about the background to the current initiative to tackle stigma and discrimination around Mental Health. This work is around the National programme -   Delivering Race Equality (DRE) and was largely triggered by the death of Rocky Bennet in 1998 who died due to staff restraining him in a ward – putting Mental Health (BME) into the spotlight.

It is on the National Agenda to have 500 Community Development workers in place to make sure services are delivered in a culturally appropriate way.

CDW’s aims are:

  • To promote and improve mental health and well being for BME communities.
  • To increase understanding of BME mental health.
  • To reduce fear and stigma of mental ill health in BME communities.
  • To facilitate and improve pathways to access to mental health and well being services for BME communities.
  • To reduce mental health inequalities.
  • Feeding information into the Commissioning process and researching BME communities needs.

What are the issues in Westminster around mental Health for Black men and women?

  • Black men and women are over represented in secondary care. Nationally black men are three times more likely to be sectioned than white men.
  • Stigma forms a barrier for religious and culture reasons
  • Institutional racism
  • Lack of understanding of mental health
  • Complexity of services
  • Under representation in psychological therapies
  • Learning from local community engagement
  • Under representation of Chinese and South Asian groups
What are the current Projects and activities taking place to achieve the aims of the CDWs?
  • Mental Health training programmes
  • Capacity building
  • Communications and BME Mental Health promotion
  • Events  (Access Events – Mental Health Promotion Workshops )
  • Outreach and Community Engagement

Laetisia went on to talk about the future – how best to build on the work that is already taking place as the National focus – Delivery of Race Equality Agenda comes to an end. She stressed that we need to raise the profile of Mental Health and make sure that Community Development workers remain in place.

Events/ Activities for the Diary!

  • Access events
  • Mental Health Promotion Workshop
  • Case studies/Potential participants?
  • MHFA training
  • World Mental Health Day events
  • Ongoing outreach

4 Minds Project – Jill Watson

4 Minds is a partnership project with Chelsea Theatre, Dalgarno Neighbourhood Trust, My Generation and K&C Social Council. It is funded by NHS Kensington and Chelsea and will run until March 2011. It is project that has come about in response to the Delivering Race Equality Agenda and New Horizons. 4 Minds is one of the 500 teams of Community development workers called upon on the National Agenda.

The aim is to take positive steps for Mental health and well being within BME communities in K&C (approx 22% of population in K&C are BME).

  • Tackling Stigma
  • Raising awareness of Mental Health
  • Offering more appropriate Mental Health services – We provide drop-ins at all centres we are based in.
We offer Training opportunities in:
  • Depression
  • Anxiety
  • Psychosis

We make the training specific to the BME communities we work with.

Bespoke Training:

We can make up a training programme according to specific needs and in an appropriate format.

Race Equality and Cultural Capability (RECC) Training
One off projects

Mental Health leaflets at the Mosque:

We are currently running a Mental Health project with Al Manaar. We have come up with a leaflet that aims to de-stigmatise Mental Health issues amongst North African communities.

There can be the supposition in some Muslim communities that if you are a ‘good Muslim’ you ought not to have Mental Health problems. Our leaflet will be handed out at the Mosque on Friday.

Interactive map and Tube map of services

We have created an Interactive map  - making services more visible.

You could help us by showing it to your service users and letting us know what is and what is not useful.

On Saturday 9th October it is World Mental Health Day and there will be an event at the Science Museum that we will take part by having our own stall – Information will be sent out shortly.

The Future – What will be focussing on?

One of the areas we want to focus on is to improve the uptake of IAPT services in BME Communities.

 

Item 4:

Social Inclusion and Recovery

Ali Wragg (Westminster Borough Lead for Occupational Therapy & Social Inclusion CNWL) and Lucy Cook (Kensington & Chelsea OT Lead/ Willow Team Manager CNWL)

Principles of recovery:
  • is about building a meaningful & satisfying life
  • represents a shift in focus from pathology, illness & symptoms
  • is about “hope”
  • encourages and facilitates self management
  • requires a shift in professional/service user relationships
  • is closely associated with social inclusion
  • is about discovering/re-discovering a sense of personal identity
  • language used & recovery stories have great significance
  • relies on the personal qualities of staff as well as their professional skills
  • relies on the inclusion of family, other supporters & networks

Overview of where we have come on in Statutory services

Late 1980’s – very much a ‘prison culture’

1990’s – advent of Community care – however still a climate of services being ‘done to you’.

Present - What we are moving towards now is a recovery orientated service with more self directed support and a more social approach to recovery.

With the advent of Disability rights and Equal Opportunities there has been a move forward in this direction.

We are moving forwards in the direction of partnership working and giving people with lived in experiences equal value to textbook experiences.

Options for delivering support:

  • Using mental health buildings where people meet other mental health service users & staff

- sanctuary or promotion of exclusion?

  • Using buildings that are also used by other members of the community, but where people with mental health issues remain together as a group

- geographical integration but minimal social integration

  • “Community bridge-building support” – assisting individuals to locate & participate in activities where they are shoulder to shoulder with the general public
Case Study
  • Mr M is a 37year old asylum seeker diagnosed with a psychotic depression and PTSD. Mr M is originally from Sudan and has currently been living in the UK since 2007.
  • He fled Sudan due to torture and intimidation on the basis of his homosexuality. He was experiencing flashbacks, nightmares, negative auditory hallucinations i.e. hears the voices of the police telling him to kill himself. He was also experiencing low mood, suicidal ideation, social isolation, poor physical health a lack of confidence and self-worthlessness.
  • He took a serious overdose in December 2008, which led to an inpatient admission. Since his admission he has been under the care of the Crisis Resolution Team on several occasions and was allocated a CMHT care coordinator and placed on enhanced CPA. There is no noted forensic or substance misuse history.

 

Mr M within his first meeting with his care coordinator and OT from the day services identified a Recovery plan this included the following:

  • Having been unable to engage in a local English course he enrolled himself into an ESOL course at CNWL with the view to then enter into a local college when he had built up his confidence.
  • He was then referred to a computer course to develop his skills with the view to work in IT related field in the future
  • Direct payments were obtained for Mr M to join a local gym and attend on a regular basis where he would also gain advice and support regarding nutritional needs.
  • Information at Mr M’s request was also obtained in relation to a local Muslim gay Society.
  • Recent contact made with Mr M identified that he had been successful in enrolling for an intermediate English course at his local college. In addition Mr M has successfully completed several IT qualifications. These qualifications combined with the recent news of Mr M obtaining a work permit has led to engagement with the local job centre to obtain a part time job as a computer analyst.
  • Mr M reports to continue to enjoy the gym and time spent with friends whom he met through attendance at the computer project and events held by the local Muslim gay society.
  • Mr M has been discharged from CPA and contact made with mental health secondary services has decreased.

Steps forward

We need to link statutory services much more with voluntary sector services. We are starting to do this.

  • Promote a culture in local communities that values and respects the diversity of individuals in order to encourage their journey in overcoming mental health difficulties
  • Current situation – often work as separate agencies. Need to develop Joint working/ partnerships – up close collaborative systems – inter reliant
  • Decide with partners how to address stigma and discrimination around mental health in their community
  • Train and support ++ mutually beneficial local people, local organisations
  • Shared ownership of projects
  • Evaluate outcomes

Item 5:

‘Count Me In’: Mental Well Being among African women in K&C

Gladys Jusu-Sheriff – Women’s association for African Networking and Development (WAND)

‘Count Me In – Mental Well being among African Women’ is a research report that was commissioned by NHS Kensington & Chelsea.

WAND is a London wide charity committed to empower African women.

Why was the report conducted?

We want to further emphasise prevention – not to let African women reach crisis point.

We want providers to respond to the needs of African women by:

  • Increasing access to services
  • Resolve the confusion between ‘Mental Illness’ and ‘Mental Well-being’

What we did:

Literature Research

We identified that most research studies are on black men – not women.

Interviews:

  • 69 individual women
  • 20 service providers

2 Focus groups (Sewing groups)

We are a grassroots organisation and we want commissioners to understand this.

Findings:

  • 72% associated mental well-being with happiness
  • 67% with good relations with family and friends
  • 60% with physical fitness

Recommendations

Three main Well-being messages were identified:

  1. Accept who you are
  2. Eat Well
  3. Keep Active

How? Deliver activities:

  • Target whole family - not women only "Children and men make me mad sometimes"
  • Music festivals
  • Outreach activities using Community groups
  • Get faith organisations involved
  • Raising awareness using:  workshops 75%, leaflets 75%, outreach 63%

Framework for Improved Well-being

Framework_for_Improved_Well-being

The Way Forward

  • Influence commissioners
  • Influence service providers to deliver differently
  • Influence GPs and other professionals

 

This is the 2nd report on African women. The first one was on HIV and women.

To end Gladys thanked Lev Pedro (K&C Social Council),  Caroline Leveaux, Jemma Curry and Patricia Griffiths of NHS Kensington & Chelsea and all who supported this project.

The report can be found at www.wanduk.org and also on the 4 Minds website.

 

Q&A

Question (Sue Vahid -CNWL) – Can you give us any information on involvement with Faith organisations?

Answer: We did approach a Mosque but they were reluctant to be involved in talking about the issues.

Finally though – women wanted safe places – women only places – women GPs.

Question (Vee Scott -NHS Westminster) – For the women that you interviewed was it a cross section of age groups?

Answer: On the whole there was not a great deal of difference. In the sewing groups we tended to have older women. We used a cultural language to speak to them – we spoke in indirect ways.

Question (Isis Amlak -BME Health Forum) – When you talk about African women, do you mean from all countries?  Carribean as well?

Answer: Yes, all black women.

 

AOB

 

  • NHS Westminster Mental Health

IAPT (Improving Access Psychological Therapies)

To help people to have an assessment at the GP we have launched a single point of access phone number and email.

We are also recruiting Arabic speaking therapists and in talks with Arabic community groups to organise support groups for Arabic women.

Employment support advisors are available to work with people who have lost jobs

We will try and set up a link on the Forum website.

 

  • Migrants Resource Centre are running outreach ESOL for Health sessions. We are willing to come and give sessions in voluntary sector organisations in Westminster.

 

  • AFMH (Advocate for Mental Health) – Free Self advocacy Training for service users in Westminster and Kensington & Chelsea.

We now have a new Somali speaking advocate – Amun Osman.

 

  • Arabic Family Service (K&C) – offering support for Muslims who may be experiencing emotional, behavioural or psychological problems.
 
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